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Epilepsy Australia is pleased to announce the publication of the latest addition to our current understanding of SUDEP in 2011.
The editorial partnership in this second edition has been strengthened with Jane Hanna, Epilepsy Bereaved (UK) and Tamzin Jeffs, SUDEP Aware (Canada) joining editors Denise Chapman & Rosey Panelli, Epilepsy Australia, along with the International Bureau for Epilepsy endorsing and supporting the publication as part of its Golden Jubilee celebrations.
The book blends case studies with scientific advances to bring the issue of sudden unexpected death in epilepsy to the forefront because by learning more, we can do more.
Written for anyone with an interest in epilepsy, Sudden Unexpected Death in Epilepsy continuing the global conversation is a SUDEP digest.
The collection of articles details current understanding from an array of unique perspectives, provides insight through the sharing of personal stories and explains the challenges of SUDEP around the globe.
This is a welcome resource to assist in the challenge to reduce epilepsy deaths, says Mike Glynn, President International Bureau for Epilepsy.
Leading SUDEP authors in the medical, legal and health professional fields and 16 families affected by SUDEP generously contributed their time and expertise towards this project. The long-term goal for highlighting SUDEP is to further scientific research, to help better understand the causes and to, ultimately, prevent these unexpected deaths.
Many SUDEP questions have yet to be answered, but the global debate continues in this book.
This volume, six years after the first edition of Sudden Unexpected Death in Epilepsy: a global conversation was introduced, brings the field forward by leaps and bounds, Solomon L. Moshe MD, President, International league Against Epilepsy.
Visit www.sudepglobalconversation.com to download the full text or individual articles, and follow the SUDEP global conversation as updates are posted.
Books are provided free through Epilepsy Australia, but there is a small charge for postage and handling.
Australia (surface mail) AUD 5.00 (p&h) International Inside Asia AUD 10.00 (p&h) International Outside Asia AUD 20.00 (p&h)
For orders please contact:
Epilepsy Australia PO Box 1049 Baulkham Hills NSW 1755 Australia
Or email: sudep@epilepsyaustralia.net
Edited by Denise Chapman, Brendon Moss, Rosemary Panelli and Russell Pollard for Epilepsy Australia and partnered by Epilepsy Bereaved [UK], Sudden Unexpected Death in Epilepsy: a global conversation brings together both the science and the human experience of sudden unexpected death in epilepsy [SUDEP] in an accessible form for all interested readers.
This publication is the first to draw together considered observations by leading authors in the medical, legal and health professional fields - each a unique perspective on SUDEP, personal stories of families affected by SUDEP and future challenges for epilepsy associations across the globe in providing this information in an appropriate and sensitive manner.
Contributors discuss many issues including: what is SUDEP? How does SUDEP occur? Who is at risk? SUDEP and the post mortem, Communicating risk, Educating health professionals and Determining the right to know.
Written for anyone with an interest in epilepsy Sudden Unexpected Death in Epilepsy: a global conversation provides the reader with a snapshot of SUDEP as it is understood in 2005.
This book is also available as a pdf document. To download click here
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While Nathan didn't win the title of Celebrity Apprentice Australia, he won the hearts of all Australians living with epilepsy. With the final going down to the wire, Ian 'Dicko' Dickson pipped Nathan at the post in the final challenge to create the best music video for their charity song. In accepting his win, Dicko showed great generosity of spirit, when he asked that the winning prize of 100k be split between their charities. His admiration for Nathan was evident throughout the show, and his wonderful gesture acknowledged how hard both contestants fought for the title. Epilepsy Australia congratulates Dicko on his win and thanks him for his awesome gesture. Nathan's appearance on Celebrity Apprentice Australia has raised a total of 80k for Epilepsy Australia which will help us continue to help people living with epilepsy Australia-wide. We congratulate Nathan on being such a wonderful Ambassador for Epilepsy Australia.
Interviewed by Erin McWhirter for TV Week, Epilepsy Australia Ambassador Nathan Jolliffe opens up about his experience of epilepsy as a child.
Interviewed by Peter Jean for the Canberra Times, Jacinta Cummins is a 'hands on' CEO working hard for her members and anyone else who contacts Epilepsy ACT.